On the occasion of the European Endometriosis Prevention Week, Midi Libre met Marion Battista. Affected by the disease, she was Endo34’s representative for five years.
It’s the fight of your life. Marion Battista, an osteopath by profession, has always had endometriosis. Only, this pathology, still little known to the medical world, is always a long time to diagnose. †Today it takes an average of seven years to diagnose the diseaseexplains Marion, former Hérault referee of the EndoFrance association. It took me ten years. I have always had regular abdominal pain. Once I had my period, as a teenager, these pains got worse and quickly became unbearable.†
Despite the various doctors and gynecologists that Marion saw complaining about her pain, the response was always the same: “Do you have pain during your period? It’s normal, you’re a woman†I realized on my own that I had endometriosis. In addition to my period pain, I was in constant pain during sex. I had very heavy periods and chronic constipation.‘ confides the thirty-something.
No treatment, no explanation
Once diagnosed, at age 22, the Biterroise began treatment. Multiple. A lot. Since at the moment no technique is universal and radical. †The first treatment I did was to stop the menstrual cycle, because it is especially during this period that the crises are triggered and are violent. Then in 2017 I underwent surgery via laparoscopy, which served to remove the adhesions of the disease. I was on progesterone therapy for a year. For now it is effective, as my last crisis dates back to January 2021!†
Crises, exactly, Marion has learned to grasp and recognize them. †I am beginning to understand that a crisis occurs when my stomach is tense. It seems like I’m five to six months pregnant when people look at me. After that I clearly have great pains in the lower abdomen, large spines on the left side, sciatica. I was already going to the hospital for a crisis and had to be given morphine to calm me down. Sometimes it’s borderline pain discomfort†
But this pain remains subjective. Not all women experience their endometriosis in the same way and not all relieve them in the same way. In ten years of experience, Marion Battista has more or less found her balance: “I started exercising more and really started to pay attention to my diet. More meat, more alcohol. For others, acupuncture works. Or osteopathy†
The government is investigating the disease
On January 11, the head of state mentioned the disease for the first time and spoke about the implemented control strategy: a large-scale research program focused on endometriosis; facilitating access to care for all affected people; the development of initial and continuing training for health professionals.
†The EndoFrance association had already worked with them on the subject before. We had met Emmanuel Macron and the health minister to discuss what could happen“especially about managing the disease.”What we mainly ask is that the disease becomes better known to the medical profession. They study pathology for just four hours in all of their medical studies. We want the government to investigate the establishment of centers of expertise in each region for better care.†
The Puimissonnaise has to travel constantly to Nîmes to be followed, the nearest doctors are not specialized enough† “It would also be essential for girls and young women to visit their doctor at least twice so that they can inform their patients. The ideal would be during their first menstrual period and during their first intercourse. This is when the disease usually surfaces comes, or at least worsens‘ she supports.
“Do not lose hope”
Today, one in ten women has endometriosis. 70% of them suffer from disabling pain. Going forward, the government plans to recognize the disease as a “long-term illness.”
In the collective unconscious, the suffering of endometriosis necessarily rhymes with infertility. However, not all women are affected. According to the EndoFrance association, 30 to 40% of them have an infertility problem. However, many doctors still advise their patients not to delay their first pregnancy for too long.
Marion Battista, former representative of EndoFrance34, assures that “ you can very well be sick and still be a mother. It will certainly be more difficult, especially if the endometriosis is placed on the ovaries or on the fallopian tubes. But there are remedies, like the PMA course (assisted reproduction)† If women still can’t get pregnant after one or even two years, I advise them to opt for this solution. But don’t lose hope. †
Once pregnant, women with the pathology see that their seizures are less present. While science doesn’t have enough perspective yet to know whether menopause will stop the disease, pregnancy has been proven. †The patient is assured of peace of mind for nine months!says Marion Battista.
Endometriosis: synonymous with infertility?
In the collective unconscious, the suffering of endometriosis necessarily rhymes with infertility. However, not all women are affected. According to the EndoFrance association, 30 to 40% of them have an infertility problem.
However, many doctors still advise their patients not to delay their first pregnancy for too long.
Marion Battista, former representative of EndoFrance34, assures that “one can very well be sick and be a mother. It will certainly be more difficult, especially if the endometriosis is placed on the ovaries or on the fallopian tubes. But there are remedies, such as as the PMA (Medically Assisted Procreation) course. If women still cannot conceive after one or even two years, I advise them to opt for this solution. But above all, we must not lose hope.”
Once pregnant, women with the pathology see that their seizures are less present. While science doesn’t have enough perspective yet to know whether menopause will stop the disease, pregnancy has been proven. “The patient is guaranteed to be quiet for nine months!” says Marion Battista.